Showing posts with label Illness. Show all posts
Showing posts with label Illness. Show all posts

Tuesday, August 1, 2017

When I Lost My Voice. My Story Of Living With A Chronic Illness.

Thermometer, Headache, Pain, Pills
         Image courtesy of Pixabay

When I Lost My Voice.

Ladies and Gentlemen, from time to time I will touch on my story of living with an invisible illness.  I told my story on Youtube so many of you know about my illness.  It is such a struggle to have to live with pain and suffering day to day.  Today I am honestly in a depressed state because I am tired of the preparation, inability to live a normal life, the judgment from healthy people, and the life that I lived prior to being diagnosed with this illness.  For those who do not know, I have Congestive Hearth Failure, Diabetes, COPD, and Asthma.

Normally, I try to be upbeat about my illness and pretend that I am normal but normal is what I will never be because of what being ill has stolen away from me.  I have lost precious moments, time that I cannot get back.  I have to plan my medications for the day, preparing in advance for outings because I am on water pills and that can be a problem because you may not be close to public bathroom facilities.

Being ill will take a toll on you financially because you always have to think before buying anything and even though I plan everything, sometimes I want to be spontaneous. I am going on a family trip very soon and I am terrified because of all the advance planning that I will have to encounter.  The meals that I will not be able to enjoy like everyone else, the lines of people waiting to go into the ladies room.

I have lost my freedom to live the life that I wanted for myself, the opportunities that I have dreamed of. Being thankful for another day is my prayer and will never give up my faith but being ill is no walk in the park, it is a sentence that can never be acquitted.   

Monday, April 17, 2017

Illness Can Equal Poverty.

                                           Illness Can Equal Poverty.

I touch on this subject from time to time because most of you know by now that I have a chronic illness.  Have been sick for a very long time and people sometimes don't understand what you go through.  Since this blog touches on the subject of saving money, I had to speak on this subject about how illness can equal poverty.

 Over the years, I have seen many people who have great careers and they seem to be on top of the world and all of a sudden an illness will compromise their well-being.  It is something very personal that can throw you into a world of uncertainty. At this point, you may not be able to do the same kind of work that you did in the past.  Bills are due and you may have small children that you are responsible for. There is a chance that you may not be able to ever work again and this is the scenario that is very troubling.

I have actually seen people who have lost everything because they are so sick.  At this point, life presents a picture that is very bleak.  It is very easy for depression to take hold of you and you are ready to give up because you don't know what else to do. There are some services available to people who are disabled but there aren't enough and they just provide the bare minimum.

We deal with being chastised, belittled and judged on a lifestyle that we didn't ask for.  Your children also may not understand fully what is going on and they may act out because of the misfortune that has severely impacted your family.  There isn't any real prediction that one day you will be sick and disabled.  Poverty takes place because if you are sick, you can not continue to build up your resume, to get a higher paying job.

Family can be helpful but sometimes they can scoff and talk negatively behind your back.  We sometimes deal with a state of loneliness that only another sick person knows.  We have a tendency to smile through our pain, so we don't have to constantly talk about being sick. I pray that one day, someone will take an active stand against the mistreatment against the disabled and also put some new laws into effect that will help the disabled live a good lifestyle without being impoverished because illness shouldn't equal poverty.